Patricia and Natalia Negron Alicea are not your typical 15 and 20-year-old girls.

  • Sisters with microcephaly struggle to get medical aid
  • Medicine, supplies scarce in Puerto Rico since Hurricane Maria
  • Group trying to raise money to get the sisters help

The Negron sisters have microcephaly, a brain development abnormality.

They also suffer from a rare birth defect called agenesis of the corpus callosum, and function with severe psychomotor retardation, among other challenges.

“This is a really really big crisis that's happening right now in Puerto Rico especially when you have medical needs,” said Jessica Pabon, a co-Pastor at House Of Every Nation in Kissimmee.

Pabon is a distant relative of the sisters and wants to help. She’s even reached out to government officials for assistance.

“It’s frustrating, it’s frustrating,” she said.

The only thing the girls can consume is vanilla flavored PediaSure, and they require 12 cases a week. However, in the aftermath of Hurricane Maria, they are only allowed to purchase one case.

“But these two girls are depending on just the little bit of food that they’re getting,” Pabon explained.

The lack of power causes them to have even more seizures.

“It’s so hot her mom has to be able to have the generator on and it takes her 40-50 per day,” Pabon said. “And this is a person who only lives for her girls.”

For those in Kissimmee trying to help it’s not an easy task. 

“I feel that my hands are strapped up," Pabon said.

We spoke to the senior pastor at House Of Every Nation over the phone, Danna Camacho who is also Pabon’s mother.

Camacho is currently in Puerto Rico and she said it’s a miracle the girls are alive since there are barely any medications or doctors on the island.

“There was a line of prayer over this house so that nothing would happen to this house and all the houses that are on that street were destroyed,” Camacho said. “The second floor houses, a bunch of wood houses but hers was not.”

This family is convinced that aid for the sisters can be found in the United States as they already have some doctors set up, but they are in need of an air ambulance transportation to bring them in.

To help and donate to the Negron sisters, click here, or contact Jessica Pabon with House of Every Nation at JessicaPabon2006@gmail.com.